"Eosinophilic disorders are often misclassified as other conditions," Franciosi says. "As larger multi-center studies are conducted through the registry, we will gain more information about symptoms, quality of life and the effectiveness of treatments. We also will be better able to conduct long-term follow-up."
Cincinnati Children's is a world-renowned center for research and treatment of eosinophilic disorders and was the first such dedicated center, seeing patients beginning in 2000. A multi-disciplinary team of specialists now sees as many as 50 cases a week, many of whom travel from across the country and around the world for treatment.
The website for the Registry for Eosinophilic Gastrointestinal Disorders goes live this week, in conjunction with National Eosinophilic Awareness Week.
Source: Cincinnati Children's Hospital Medical Center